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NFCA Research Reports and Surveys
The Family Caregiver Self-Awareness and Empowerment Project - Market Research on Developing a
Communications Strategy to Reach Family Caregivers was an effort to gain a better understanding of
why so many family caregivers do not self-identify and what can be done to gain
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their attention. This
market research phase produced five reports: a base-line survey conducted by AARP; a communications
audit, an appendix, a focus group report, and a message testing report. Phase II the implementation
portion of the project is currently under development.
Major funding provided by the Retirement Research Foundation
Additional funding from Janssen Pharmaceutical and the American Red Cross.
In-kind services provided by AARP
AARP Caregiver Identification Study
Self-Awareness in Family Caregiving - A Report on the Communications Environment
Appendix to Communications Environment
Report of Formative Focus Groups
Market Research Report - Message Testing
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Other Surveys and Reports
AARP Public Policy Institute Study: Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving (2007)
This brief discusses the financial impact of caregiving on the caregivers themselves as well as the
economic value of their contributions to society. It compares the economic value of informal
caregiving to other benchmarks in order to underscore the magnitude of these unpaid contributions,
presents estimates of productivity losses to U.S. businesses from caregiving, and highlights the
critical role that family caregivers play in the nation's long-term care system. Finally, it
recommends ways to support informal caregivers through public policies and in the private sector.
The Survey of Self-Identified Family Caregivers (2001) was conducted simultaneously with the research
phase of the Family Caregiver Self-Awareness and Empowerment Project to ascertain from caregivers known
to acknowledge their caregiving role and title, what impact self-identifying had on their caregiving
experience and what triggered the identification.
Comparing Survey Stats and Understanding Why They Differ is an analysis of four different research
efforts regarding family caregivers. They all report a different number of family caregivers in the U.S.
This comparative paper provides an explanation for the differences and provides insight into how to view
survey statistics.
Caregiver Survey, July 2000 discusses the results of a random sample survey of family caregivers across
the life span. Traditionally surveys of family caregivers look at a particular population segment. This
life span approach provides a more comprehensive understanding of our entire population of family
caregivers.
Caregiving Across the Life Cycle (1998) discusses the results of an NFCA member survey and provides insights into the lives of long-serving family caregivers providing a fairly high level of care. Data on the similarities and differences between different categories of family caregivers — spousal, parental, and children of aging parents — is presented.
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