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FORUMS > Caregiver Depression < refresh >
Topic Title: He just wants me to let him die!
Created On Friday July 16, 2010 1:41 PM
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Star1

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Friday July 16, 2010 1:41 PM
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Back in April David got really sick and spent most of the next 8 weeks in the hospital. He had bouts of panreatitis, gallbladder attacks, kidney infections and an infected bowel. He had constant bloody diarreah from the bowel infection, so much so that he was anemic and it took 2 kinds of IV antibiotics to knock it out of him. He just recently was released by the medicare nurses because his 60 days were up. 3 Days ago his beloved stepmom died and now he is terribly sick again!
I called the ambulance yesterday.......his blood pressure was through the roof, he had diarreah, fever, and a sharp pain in his side, like when he had pancreatitis. The stupid hospital said they didn't find anything wrong with him and told me to take him home! He was so weak that they actually had to have an orderly pick him up and put him into my car because I couldn't move him. When I got home I couldn't get him out of my car. A man pulled in right behind me [to sell me something] and the sweetheart helped get David into his wheelchair. The stranger and my son's friend, Brian, carried David out of the car and into his chair.
Last night at 1:30 my son and his friend had to carry David to the toilet. It was horrendous. I'll spare you the details, but, let's just say he has bad diarreah. You get the picture.
This morning I called the doctor and they told me to call the ambulance again and get him to the hospital. He has had nothing to eat or drink since Weds. It is hot here and he is going to be dehydrated. I haven't called the ambulance yet because David asked me to leave him alone and just let him die! I won't do that of course, but, for right now I am just letting him sleep a little before I call 911.

I hate this.......I hate that we are always is crisis mode. I'm sorry my son has to see his father this way. I'm sick of the constant waiting and watching to see if he is going to get worse or better. After 16 years I am just tired of it all, the doctor-hospital-nurse-home health aid-medicine-meters-wheelchair ramps-appointments, etc., etc., etc. I am so weary of this life. It never seems to end, it just goes on and on and all of us are miserable.

I know none of you can do anything, it just helps to know that you are out there listening. Pam.
 
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TiredDave

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Friday July 16, 2010 2:01 PM
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Pam,

We are listening and we are praying. As for the hospital tell them politlely but firmly that you will pick him up when he is well. Not when insurance or medicare says his time is up. Talk to the doc or the patient ombudsman at the hospital.

Also if he stays take some time for yourself, you need it. This is a hard life we lead we need to rest.

Dave Caregiver to Pat
 
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myonly

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Friday July 16, 2010 2:48 PM
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I hear you, Pam. Prayers are being sent at this end, too. I wish I could offer you some relief.

Love,
Gaby



 
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Star1

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Saturday July 17, 2010 8:24 AM
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I haven't yet sent him back to the hospital. He is refusing to go. I am at my wit's end with him. He weighs 225 pounds and I can't get him up to go to the toilet. He has diarreah and even with the big diapers and chucks it's a real mess! I don't have a bed pan and even if I did there isn't even enough time to put him on it when he has to go. He always tells me when he's already going and a person can't just sit on a bedpan all day. If this doesn't get better soon I'm going to have to call the ambulance and have them take him to at least get fluids in him. Pam.
 
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rzxq2y

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Saturday July 17, 2010 12:14 PM
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Hi, Pam,

Just want to let you know that I am listening, and I have read all your posts. I am so appalled that there is obviousloy something terribly wrong with David but the hospital would say that there is nothing wrong just because they cannot find what is wrong. The indestructable man should not be set home in pain.

I kind of know what a big mess is, even with protective underwaer and chucks. At night, it is already too late to do anything when my wife tells me.

Hope that you called the ambulance and the ER did not send him back home again.

Best Regards,

Min-Shih
 
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TiredDave

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Saturday July 17, 2010 7:33 PM
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Pam,

I hope you called the ambulance for him. Keep us posted. I'm having my own crises and will post in another topic.

Dave
 
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myonly

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Wednesday July 21, 2010 10:01 AM
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Pam,
Please post a word to let us know you're ok. I am hoping you took David to the hospital. I am worried about you and your son. We're here for you!!

Hugs,
Gaby

 
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Star1

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Wednesday July 21, 2010 11:30 AM
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I did send him back to the hospital. I told the ER doc that I was not taking him back home again until he was better! [Good advise, Dave]. So that's where he is. As of today they still don't know what is causing the horrendous diarreah. The tests are negative so far for the bacteria. I finally got some sleep last night and am feeling better today. I'll let you know what happens next. Thanks for being concerned about me! Pam.
 
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rzxq2y

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Wednesday July 21, 2010 12:16 PM
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Hi, Pam,

Thanks for the update, at least it is good to know that you got some sleep and David is back in the hospital. Hope that they will find out what is wrong soon.

Best Regards,

Min-Shih
 
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myonly

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Wednesday July 21, 2010 1:25 PM
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Thanks for the update, Pam. How are YOU??? I'll be praying.
Love,
Gab

 
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TiredDave

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Wednesday July 21, 2010 1:44 PM
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Pam,
Good for you just remember to take some me time while David is in the hospital.

Dave
 
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morenews1

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Wednesday July 21, 2010 3:12 PM
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Dear Pam, i have read this thread only now...
how difficult.
how are you doing? where is your husband now?
did they figure out what is wrong with him? did they stop diahrea?
take care of yourself.
m.

-------------------------
God help us, m.
 
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colette

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Wednesday July 21, 2010 8:39 PM
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Pam,

I am just now reading this thread.

If DH EVER says he does not want to go back to the hospital, call 911 anyhow. The medics will override his objections when they know there is a problem. DH was getting dehydrated and that could have something to do with his mental state.

I am with Dave about DH staying in the hospital until he is well. Do what you have to to keep him there until everything clears up.

Keep us posted.
Colette
xoxoxo

-------------------------
Family Caregivers are not paid because they are worthless; Family Caregivers are PRICELESS!
(paraphrased & source unknown)
 
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Star1

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Thursday July 22, 2010 1:45 PM
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I have been doing something for myself, I didn't get up until 8:30 this morning! Then, I got on my tractor and did some brush hogging. [For those of you who are not farmers, it's just a big weed cutter pulled behind the tractor]. I like to keep the fields cleared so the trees don't grow in them. I only have maybe 35 or 40 acres of clear land, the rest of the 130 acres is woods. I'd rather spend my time out in the fields than in this house, and, if you came in here right now, you would know it is true! My house is always a mess!

The hospital hasn't called and that's OK with me. I need a break. If he is worse or if they find out what's wrong they will call.

Well, I'm off to buy diesel fuel for the tractor so I can keep working. Pam.
 
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TiredDave

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Thursday July 22, 2010 4:20 PM
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Pam,

I've spent a few days on a tractor (usually with a belly mower) in the field myself. It's a good way to spend the day. Enjoy.

Dave
 
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majikgypsy

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Thursday July 22, 2010 7:15 PM
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Pam, my heart goes out to you. I am glad you got some tractor time! While I only have a riding lawnmower, it was my only real escape when I was caring for my dad. It was long days and nights and he firmly refused to a hospital. But he was terminal, with cancer, and I had to respect his choice. Now that it is my husband who is sick, I'd call 911 in a heart beat! The house is the last thing that you should worry about right now! Do something you love, something only for you, something that will make your heart smile. You need it!


-------------------------
Blessings,
Jan
 
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Star1

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Friday July 23, 2010 9:02 AM
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There are a lot of people who don't understand why I continue to shovel snow, mow the lawn, and work on the tractor. They say that I should sell my farm and move to something smaller so I don't have to work as hard!! I don't see it at working too hard. I like cutting grass and keeping the fields clean. I like being outside and getting a farmer's tan every summer! It really gives me a break from what is happening inside the house when I go out and pull weeds from the garden or take care of my horses. Yesterday was nice, I got to spend the whole day out there in the field. I could take a break when I wanted or not stop at all. I was my own boss for the day. My son is at a friend's house, David is in the hospital and I was free for a day.

Today I have to go the hospital. They might be letting David go. I'm not sure yet. Pam.
 
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TiredDave

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Friday July 23, 2010 2:09 PM
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Pam,

Well for the most part those people mean well and it's worth listening to advice. But if they get too pushy I gently remind them and it is my life not theirs and at the end I will answer to God for it not them. That means it's my decision. Live your life the way you want.

Dave
 
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morenews1

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Friday July 23, 2010 3:14 PM
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Dear Pam, you are amazing...i am so far from all this farm-work, that it seems to me so difficult. But i can understand if you love this, it is a break, and it is a rest from depressing and so often not rewarding work of caregiver.
i am glad that you had your break, and hopefully David is getting better at the hospital.
please get us all posted,
m.

-------------------------
God help us, m.
 
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rzxq2y

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Friday July 23, 2010 6:38 PM
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Hi, Pam,

We live in the city, in a small house wuth no much lawn and a driveway. I like to mow the lawn and clear the snow, very healthy and therapeutic to me. In the winter time, I hand shovel the snow and only use my snow thrower when we need to go somewhere in a hurry. I also have a small garden that I kept since we moved in 30 some years ago. But indeed there are people give me all kinds of advice with good intention. Some suggest that I should hire people to mow the lawn and removed the snow. Since we are older, some even suggest that we should sell our house and move into an assisted living facility or senior apartment. When I tried to explain to then, they will say that it is our life. But next time, we will go through the same again.

I sort of understand where you come from and I admire your ability to manage a farm. As Marina said, you are amazing.

Best Regards,

Min-Shih
 
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Star1

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Saturday July 24, 2010 8:33 AM
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I live on a farm because I like being out away from everything. I like the peace and quiet of country living. When I quit my job to stay home and take care of David I lost a lot in the way of any retirement or 401K that I would have had. So, the property I own is all I have to leave to my son when I go. David has nothing. He came here with nothing and has nothing to leave for our son. I own this farm and another 45 acres of commercial property that my ex-husband left me and as soon as my son turns 18 I'm transfering it over to him so there will be no inheritance taxes for him to pay. I don't want something smaller and easier, like Min-Shih says, even with a small place you still have to take care of it, and I can't stand the thought of living in a condo or whatever!

David came home yesterday. They think he had colitis. He's a better for now. Pam.

PS......thanks for saying I'm amazing, if you only knew that this is the only way I can keep a little sanity, you wouldn't say that! You should see my house, it is always a disaster even with the aids helping out all the time!

Edited: Saturday July 24, 2010 at 8:37 AM by Star1
 
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raisingme

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Wednesday July 28, 2010 7:32 PM
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I just want to give you a great big HUG - so I'm going to - HUG! While you have cutting grass and fighting weeds I have been hitting the keyboard with my fingers. We gave up our acreage after my husband's second stroke and live in a townhouse now (ooohhh not liking it much so I get it!). My husband has wanted to die several times over the past 6 and a half years and there have been times I have wanted to throw in the towel as well. My husband picked up something called CDIF (pronounced seediff) when he was in a sub-acute hospital with the result being much like what you describe your husband going through. I'm not sure of the spelling it was one thing in a litany of ills and complications my husband has suffered. It has been challenging to keep up with it all.

It would be nice if the medical professionals for all their vocabulary understood the difference between the words "I cannot" and the words "I will not" as they have a penchant for hearing will not rather than cannot as in not physically able to perform x task. Also, there is absolutely no training whatsoever offered for those of us who are ill prepared to take on the roll of 'nurse'.

I've even developed a little Caregiver Humor in one of my many writings on the topic of Caregiving - I hope it brightens your day a little.
http://hubpages.com/hub/keeponcaring

Sending a hug your way, J
 
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Star1

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Thursday July 29, 2010 9:11 AM
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Yes, he has been tested for C-Diff, it was negative. C-Diff is almost entirely a hospital related illness, in other words, you only get it in the hospital where it runs rampant! Thanks for the hugs, I need them.

I'm looking up your caregiving humor right now. Pam.
 
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Tigger

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Thursday July 29, 2010 8:11 PM
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Holy Shmoly! Like you don't have enough on your plate!

Since my partner was diagnosed, we have had to have some VERY unpleasant discussions- when is the right time to let go, DNR orders, managing his mother, where to bury him. I hate those.

It is not abnormal for a person who has lived with long term disability to just want to stop. Even with the brain damage, he knows what a drain this all is to you and to your son. He may never express it because to do so would just cement that he is a failure in every single possible way.

I understand the impact of long term failure. I have 47 years of it under my belt. More than anything, it was that failure- constantly reinforced by the hospital and the partner's parents- that made suicide look like the only conceivable answer back in September. It has taken a h*ll of a lot of work to get out of feeling that way.

I can't imagine what you have been through with all this. I truly can't. I begin to see that I am "lucky" in a way. My time as a caregiver will be relatively short. I've only been at it a year and I don't think I will be doing this at this time next year. The d*mn cancer is just too vicious to let us have time.

What I know is that you are hearing a voice speaking desperation and hating himself for what he is doing to you. Brain damage is a funny thing. There are places he is totally unaware of what he is doing and totally unaware of hurting you and your son. And then there are times of awareness.

Try to hear, "I am SO tired of all of this" and not "just let me die". What he wants is to not hurt and not hurt you.
 
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myonly

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Monday August 23, 2010 8:38 PM
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Dear Pam,
Just wondering how you're doing, and how things are with David. Hope you are getting some kind of shelter in all this storm.

Do you ever get away, just by yourself? Wish you could have a WONDERFUL vacation all to yourself!

Hugs,
Gaby
 
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