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FORUMS > Getting Doctors to Take Notice < refresh >
Topic Title: How to Communicate with Doctors as Caregivers
Created On Friday June 26, 2009 11:48 PM
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colette

Posts: 374
Joined: Jul 2009

Thursday April 22, 2010 5:33 PM
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Stand your ground, Gabriele. Until he gets to college, you still have the final say in his education.

Check to see if he can take Economics as a summer school class, preferably in a community college if the high school has an agreement that high school classes in community college count towards high school diploma AND college credit.

What honors Algebra is he taking -- I or II? If memory serves me right the sophmore year is for Geometry and junior year is for Algebra II. I would encourage him to stick to Geometry. It is a far different math than Algebra. I would not want him to "burn out" on math, even if he thrives on it. I think to take Algebra II one needs a full understanding of Geometry. Check with his guidance counselor.

One more note . . . check out Guatemala + volunteer. There is a program where American students as young as 14 can volunteer in a Guatemala government-sponsored program. This program was featured in Family Circle magazine about 12 years ago. A knowledge of Spanish is required. I do not know the cost. The magazine article highlighted a boy from Harlem who went to Guatemala to give vaccines to the children. This kind of volunteering would look good on his college application, as well as his first job application.

I just tried my local HS and it is after 4:00 p.m., & the ppl have vanished for the day. :-( Anyhow, stick to your guns. He can "play around" with electives in college as to what he wants to do. I am a big believer in being "well-rounded" in high school curriculum, also.

Sincerely,
Colette


-------------------------
Family Caregivers are not paid because they are worthless; Family Caregivers are PRICELESS!
(paraphrased & source unknown)
 
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myonly

Posts: 318
Joined: Apr 2010

Wednesday April 28, 2010 9:19 PM
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Dear Colette and Min-Shih,

I meant to relay to you how our course selection dilemma played-out. Joe did present his reasons for wanting to pursue marketing, and he did his homework and presented a good case. I respect the fact that he felt strongly enough to do some background homework on what this class would offer him. I made my viewpoint known and he heard me out as well. We also checked with the dept. head in languages, as sometimes the higher-level courses depend on enrollment to actually be offered in the Fall. This happens to be the case with 3rd-year Spanish. In the end, I let him make the decision. I was impressed with his maturity in working through the whole process and am satisfied with his decision. However, I did let him know that if, for any reason, the Marketing class is a no-go in September, that he will be taking Spanish III if it is offered.

Colette, the idea of taking summer classes was a good one. However, Joe will be a camp counselor at Boy Scout Camp for the entire summer, so that wouldn't work for us this year. Also, he works so hard during the year that the idea of taking courses in the summer (at least right now) makes him wince. He doesn't have much longer to be a "kid"! Adult responsibilities start to come fast and furious once he's on his own.

Thanks again to you both for giving me advice. Oh, and by the way, I did get to visit my parents last Friday and had a wonderful day. We went to the Farmer's Market (my all-time, hands-down favorite place!), and just spent time together. AND I felt like their daughter again - my mom chased me out of the kitchen when she was trying to cook, and my dad scolded me for playing around in the creek that runs through the length of our yard. It felt great.

Have a great evening everyone.

Lots of love,
Gabriele

 
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rzxq2y

Posts: 1612
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Thursday April 29, 2010 9:48 PM
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Hi, Garbiele, thanks for sharing with us about the course selection. I certainly admire how you and your son resolved the differences. Obviously he is motivated and mature, and you listened to him and made your presentation. Hope that everything will work out. By the way, is he the one had the lawn mower accident?

Ok. Back to the suject. My wife's primary care physicia mailed us and the neurologist the result of her blood work, everything is normal.

Best Regards,

Min-Shih

Edited: Saturday May 01, 2010 at 1:35 PM by rzxq2y
 
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myonly

Posts: 318
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Friday April 30, 2010 4:37 PM
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Dear Min-Shih,
I'm so glad to hear that your wife's lab results were all normal. I hope, too, that her new motivation with her exercises keeps going strong.

Well, it's supposed to be in the 80s here this weekend, so I'm hoping to get outside and do some gardening. We put in a group order at work for Michigan Bulb, and all the plants/starters just came in. I bought some ferns, cyclamen, and bleeding hearts. We have a shady area in the front yard that I have earmarked for some of them.

Yes, the son in high school is also the one that had the lawnmower accident this week. The finger is healing, but it still looks frightening (perhaps because he had to have the top taken off!). There was no bone damage or loss, thank heavens. The skin should heal, as it was mainly some fat and the epidermis that was lost. It still looks like something out of a horror movie, which by the way I NEVER watch. I am a chicken, through-and-through.

I haven't heard anything from the neuro-psychiatrist. I was going to give her a week to review her results and (hopefully!) dictate a letter to my husband's primary doc and neurologist. I will e-mail her at the end of the next week if I haven't heard anything, and ask her to forward me a copy of her results from the evaluation.

Hope you have a wonderful weekend!

Regards,
Gabriele

 
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rzxq2y

Posts: 1612
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Tuesday May 25, 2010 9:41 PM
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Hi, all,

I am entering basically a meaningless post here, to get rid of that to get the name of that obnoxious spambot off the screen.

Best Regards,

Min-Shih
 
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colette

Posts: 374
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Wednesday May 26, 2010 10:07 PM
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Gabriel,

I am glad to hear there was a resolution to your son's classes that both sides agreed on. My daughters chose to take classes during some summers so that they could take college courses in their senior year of high school and get duel credt (high school & college). One daughter was a Girl Scout and completed her Gold Award one summer (no classes.)

Tomorrow my husband and I are going to check out an assisted living facility where his sister (my SIL) can live. He retires at the end of the year (age 74) from a NASA contractor, and says we will not have the $$ to continue to put SIL in sr day care 12 hrs a day. This was supposed to be a 2 month visit while her other brother's wife received breast cancer treatment. That was 11 years ago this July. The other brother always has a reason why he cannot take her back, even for a 2 week trip.

Now I am feeling guilty and wanting to back out of the idea. I keep telling myself that SIL needs to be around ppl her age, live independently, and in a safe environment. Someone mentioned a book about the 5 steps of grief. I am going to pick it up. I know SIL is against the idea, and thinks it is just a threat on my part. Hubby said he would be the one to tell his sis that she is moving to a better place. We also need to have a family meeting. I can already hear the outcry from our grown children that their aunt would be moving to assisted living.

Thanks for listening, everyone.
Colette

-------------------------
Family Caregivers are not paid because they are worthless; Family Caregivers are PRICELESS!
(paraphrased & source unknown)
 
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myonly

Posts: 318
Joined: Apr 2010

Thursday May 27, 2010 8:53 AM
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Wow, Colette, you have a lot on your plate. I will keep you in prayer as you work together to make these tough choices. It always ticks me off when those who don't step up to the plate with a family member's caregiving, all of a sudden burst forth with their "opinions" once new options are considered!! If you won't play any (or very little) role in caring for this person, how can you have a say in what needs to be done??! You need to do what you decide is best.

I will pray for patience, clarity, and peace for you all.

Gaby

 
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Witsendwife

Posts: 4
Joined: Mar 2010

Friday July 30, 2010 8:47 PM
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I'm new at this Caregiver forum but just have to make a comment about doctor/caregiver realtionship. I care for my husband who has been disabled with Crohn's Disease for 22 years and lately, it's becoming more than I can bear. I had an annual physical with my doctor (who is also my husband's pcp) yesterday and I spilled my guts out to him. His reaction? Looked down at the floor and said "yeah, it's tough to live with this and know that he wants your attention so much. Maybe you should just go to a psychologist" and he practically RAN out of the room.

So much for respecting the doctor!
"witsendwife"

-------------------------
breaking my heart
 
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colette

Posts: 374
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Friday July 30, 2010 11:49 PM
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Witsendwife,

Welcome to this forum. You can vent your feelings here and know that someone who knows how you feel will respond. It is sad your PCP cannot sympathize with your situation as a caregiver. My first reaction was that you needed to find someone who can deal with dear husband (DH) along with supporting you as a family caregiver.

Give the PCP (1 time) the benefit of the doubt he was having a bad day. AND write a letter to the doctor letting him know how you felt with his response. You were expecting some support, not a referral to a psychologist.

Here are some websites I refer people to. I hope you find them of help.

TEN CAREGIVER COMMANDMENTS

PREVENTING CAREGIVER BURNOUT

Most people know the abbreviated version of the SERENITY PRAYER. Here is the full version.

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
Amen.


--Reinhold Niebuhr

Wits, you need to pat yourself on the back for the terrific job you are doing. Take care of yourself as you are not good to anyone should your health fail.

Keep posting as you will find some therapy in talking to other family caregivers. Jump in with your own thoughts when you see a post you can relate to.

((Hugs))
Colette
xoxoxo


-------------------------
Family Caregivers are not paid because they are worthless; Family Caregivers are PRICELESS!
(paraphrased & source unknown)
 
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rzxq2y

Posts: 1612
Joined: Jun 2009

Saturday July 31, 2010 10:38 PM
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Hi, Witsendwife,

Did I understand correctlt that he looked at the floor and told you to see a psychologist, and he almost ran out of the room? Primary care physicians are suppose to be able to deal with at least some aspects of emotional issues. Prior to this, has he been helpful in dealing with your husband's health issues and yourself? If not really, maybe it is time to look for another doctor.

Best Regards,

Min-Shih
 
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Witsendwife

Posts: 4
Joined: Mar 2010

Tuesday August 10, 2010 4:19 PM
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Thanks to all for your kind words - this is a wonderful site and I'll have to visit it more often. Bill has just gone thru 2 caataract surgeries in past 2 weeks so I haven't been thinking about computer too much. It's always something with him. Yes, I'd love to get a different PCP for Bill but he reallly likes this doctor. I've actually been to a psychologist - a few years ago - and found no relief. Some of my problem is my own fault as I "cave" when Bill gets upset that I'm doing stuff w/o him - he doesn't seem to care that I have "needs" - he just says that I'm not empathetic and only think about my own wishes. I realize he's wrong but you can't fight all the time, right? I'll keep on writing and reading all your comments cuz I can see we're all in the same boat and it's important for me to talk to people who really understand my circumstances - talk about empathy - you guys really do have it! Bless You All!

-------------------------
breaking my heart
 
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colette

Posts: 374
Joined: Jul 2009

Tuesday August 10, 2010 11:23 PM
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Witsendwife,

Quote

he just says that I'm not empathetic and only think about my own wishes


If care recipient can't get their way, make the caregiver feel GUILTY that the caregiver is not waiting on care recipient hand and foot. This happens, even in my situation. Remember the 1st Caregiving Commandment: Put YOUR oxygen mask on FIRST b/4 attempting to help another. Please print out those commandments and post them where you AND DH can see them daily.

To put things in perspective (as another caregiver said), please see my post under "ADVICE TO OTHER CAREGIVERS," Topic: Need Some Encouragement?

(((HUGS)))
Colette

-------------------------
Family Caregivers are not paid because they are worthless; Family Caregivers are PRICELESS!
(paraphrased & source unknown)
 
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amparo789

Posts: 15
Joined: Jul 2009

Tuesday August 17, 2010 2:08 PM
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good morning and know i pay for you and your wife all the time it is so very nice to see a man take the caregiving role so many just give up and have some one else do the work in life your is love!!! i do not know if anyone one of us can say anything new that has not already happenned to another but learning the condition as much as we can learn to do medical need shot.blood draws. med contral. ext can only help make us less dependant on outside help that sometime can be more harmful than good like i had said before i stop believing the doctors where gods and had the cure but what i do know is they have the power to get things done with our help you mention internts i call them baby doctors they want a complete history and all they are doing is playing secretary to the main doctor so many years of dealling with my sons illness has made me very damanding when they take to long the internts asking questions wanting to know the whole medical history i get short a sweet right to the point give the copies of the blood labs i coping of all the med i need refills for and remind them that the longer my son is in the hospital waiting for the main doctor to make his entrence there more of a chance my son can catch a simple cold that could kill him i have to say the team i have is god sent but it has taken years of learning.praying, and working real hard to get things done i learned from one of my sons nuros he took care of him for 11 years that the patient or in our cases we are in control there wil be times we run across some doctors or just plain staff that treat us like we do not know what we are talking about or even with disrepect but that is part of the journey we are travling the simply why to survive is to know what we are talking about make our list before we see them and make them notice that our loved one are there and that they are human and do not allow a doctor to walk away without getting all the answer to you guestions and if they do pull them back and if that still does not work ask to speek to adminstration and ask them to make the doctor answer your questions or concers we can not ask for department heads because a lot of us are dealing with them as our loved ones doctor and know we can disagree with a treatment or med some of us go in circle with treatments hope this time it will work impowering yourself with knowledge on the illness we are dealing with and a court papar giving us contol over medical descions goes a long way i do not think i have said anything new that some one some where has not done or gone though but i a very grateful for this site i just still need to learn to find my way around it with all my love and prayers take care of you

-------------------------
Amparo
loving mother and surviving
 
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amparo789

Posts: 15
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Thursday August 19, 2010 7:48 AM
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good morning (rzxq2y) i did not mean pay i ment pray when i first came on the site i thought it was just women only because of my oun journey though the years waiting in the doctors or clinics waiting rooms with my child i would see couples and as time went by the women where alone with there children i just thought it was like me that there husbands had to work as time went on and i learned to comunicate with other parents i found out most of the men had left the family so for all the love in your heart and in your live i praise you in my journey you are the first i hear of taking it head on your wife is a lucky women and you are in every sence of the word a MAN thank you for being you

-------------------------
Amparo
loving mother and surviving
 
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