The Family Caregiver Forum
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Welcome to the NFCA's Family Caregiver Forum - a place where all family caregivers can post questions, receive support and communicate with others.
myonly
Posts: 311
Joined: Apr 2010
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Tuesday June 01, 2010 11:48 AM
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Hi Charles,
I was wondering how you were doing. Great to hear from you again.
My husband gets knee pain off-and-on from the MS, but it's usually controlled with over-the-counter meds. You're talking about much worse pain, and yes, it's a shame that the doctors are so reluctant to prescribe medication for it. Would they refer you to a pain management practice perhaps?
I work in ophthalmology, and even being in the eye field, we occasionally get patients with chronic pain problems (unrelated to their eyes) who ask our docs to prescribe heavy narcotics. Sometimes you get folks who are "shopping around" and trying to hit up every doctor they see in order to score some pain meds, which they either take themselves or sell. But if you have a good relationship with your doctors, and they know your situation, and that you're such a great caretaker for your wife, I can't see why they balk at prescribing pain medication for her. I wonder, like I mentioned above, if she saw a pain management doctor, if that would help. I know, though - it's hard to get them ready and out the door for every single appointment, it's hard thinking you've got to go see ONE MORE! I just took my husband for a dental visit this morning, and I'm exhausted, physically and emotionally. And that's just the dentist!!
My prayers are with you. Keep your chin up!
Gaby
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majikgypsy
Posts: 12
Joined: Jul 2010
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Monday July 19, 2010 1:07 PM
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Hi, I wanted to add here, even if you do get a doctor to prescribe pain meds, be aware that they can take them away too. My husband, a 22 year vet, was given morphine and pericet for 6 years. Then they cut him off cold turkey. He almost died! Since then we have changed from the local army base's doctors to a private doctor. He's still on pain meds, but a lesser one. And no way near as much!
Also, he has ALS. It took almost a year at the army base to get him to a specialist. Now, we just hope to move from a non-compationate care state to Colorado. I am still having problems getting the paper work that says he has ALS. They want more testing which is done over 7 hours from our home and the testing is very painful.
I wish you luck in getting the correct care, here in Louisiana, it's just not going to happen!
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Blessings,
Jan
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